Research
Health Related Quality of Life for People with Aphasia
This research project contributed to the development of the Stroke and Aphasia Quality of Life Scale- 39 item version (SAQOL-39). This measurement tool gives the opportunity to people with aphasia to express how stroke and aphasia has impacted on their lives. This tool is attracting interest and is being increasingly used in rehabilitation teams and research. It has been adapted for use in, among other countries, Brasil, Canada, Croatia, Cuba, Finland, Germany, Greece, Italy, Japan, the Netherlands, Norway, Poland, Portugal, Sweden, Turkey.
Who is involved: Katerina Hilari & Dick Wiggins from City University London & Donna Lamping and Sarah Smith from the London School of Hygiene and Tropical Medicine and Sally Byng from Connect
For further information about this project contact: Katerina.hilari@city.ac.uk
Research publications arising from the project
Hilari K. and Northcott S. (2006) Social support in people with chronic aphasia. Aphasiology, 20(1), 17-36
Hilari K., Wiggins R. D., Roy P., Byng S., & Smith S.C. (2003) Predictors of health-related quality of life (HRQL) in people with chronic aphasia. Aphasiology, 17 (4), 365-381
Hilari K., Byng S., Lamping D.L., & Smith S.C. (2003) The stroke and aphasia quality of life scale-39 (SAQOL-39): evaluation of acceptability, reliability and validity. Stroke, 34 (8), 1944-1950
Hilari K., Byng S. & Pring T. (2001) Measuring well-being in aphasia: The GHQ-28 versus the NHP. Advances in Speech-Language Pathology, 3 (2), 129-137.
Hilari K. & Northcott S. (2004) Social support and HRQL in people with aphasia. Quality of Life Research, 13(9), 1537.
Hilari K., Byng S., Lamping D.L., & Smith S.C. (2002) The stroke and aphasia quality of life scale-39 item version (SAQOL-39). Quality of Life Research, 11(7), 651
Hilari K. (2003) The Stroke and aphasia quality of life scale- 39 item version. London: City University
Pack includes: the SAQOL-39 instrument, the SAQOL-39 manual and a scoring sheet.
Hilari K. (2002) Assessing health-related quality of life in people with aphasia. Doctoral dissertation. London: City University
Research funded by: The Stroke Assoication, The Dunhill Medical Trust, The Health Foundation
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